Wednesday, July 15, 2009

All Around Update July 15 2009

I went in to have CT scans done last Thursday. The results were not what I was hoping for. Apparently the tumor has grown and there are new spots on my liver. At this point, my oncologist is recommending a new treatment modality. He wants me to go on a new drug called RADD 001 which has been recently approved for kidney cancer but which also shows a lot of promise with the type of cancer I have. It's a very expensive drug and I have to apply for assistance from the company which makes it, Novartus. Right now I'm going through the paperwork and as soon as I know anything, I'll let you know.

I also went to Social Security with my father yesterday to try to get some answers regarding the ridiculous claim that I owe them $13,000. They were extremely unhelpful and I came away more confused then ever before. I now have to contact all my employers and get my payroll and HR records sent to Social Security. I have my father helping me which is good. The entire experience is so frustrating.

1 comment:

Gayle Carrigan said...

Hi Ben,

Haven't heard from you in awhile so I am just checking up. Hope you are feeling OK. I wanted you to know that we are thinking about you.

Love, Gayle