Here is the latest:
The cancer in my liver has grown and new spots are visible. From what I understand, the spot on my liver which was previously seen has grown in size from around one centimeter to two centimeters, and other spots have now materialized. There is cancer in my pelvic bone as well as in my ribs; although the cancer in my ribs is not that bad. The original tumor located between my pelvis and my rectum is extremely active. So, the bottom line is my cancer is worse, not better.
We all agree that I need treatment and that it should be aggressive; but as you know I can't tolerate the side effects. This could be from a number of things, but the most obvious concern is crones disease. So I will be connecting with a doctor from UCLA who is both a GI and an oncologist, and whom will hopefully understand my concerns and address them. I'll also be going in for a dedicated spine MRI as soon as possible. The concern here is possible paralysis as the tumor is on the spine and close to the nerve, as well as fracture. I'll be addressing my bone issues directly as part of an overall treatment plan.
Right now I need some time to digest what has happened. I don't feel so bad since I already knew the news was going to be poor. My spirits and humor are up and I am not sad, although I'm not particularly happy. I just am.
More as I know.
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