BIG NEWS!!!

OK, I got the biopsy results back...

Per Dr. Dean Chau, it is NOT chordoma. It appears to be a neuroendocrine tumor, related to my crohn's disease. This is very positive news. It means that they know what it is, and it means that we now can move forward with an established plan for treatment. I will still have to have surgery, radiation, and probably chemotherapy; and it could still be malignant. However, overall it is good news for me and I am grateful it is what it is : )

More to follow.

By the way, I know that you can look up this tumor online. I already did that so I know what I'm dealing with. I am not getting Pollyana about the outcome, but having something that is dealt with regularly is much better then dealing with something that less then 3,000 people in the whole country have. Please, restrain yourselves from sending me or my family articles about this tumor, treatments, doctors, etc. I find that much of what is found online is the worst case senario and often tends to describe treatment and recovery in harsh terms. And, quite frankly, I don't want to know. I want to be told directly by my doctor the prognosis and recovery plan, and base my expectations on that.