After speaking with Dr. Dean Chao, who is the chordoma specialist at UCSF, here is the very latest:
Dr. Chao believes this is in fact a chordoma, but does not present itself in the classic form (ie, no lesions). He has given us the OK to proceed with the biopsy, with the strong proviso the area of skin they enter has to be marked, either by a stich or a tattoo, so it can be easily referenced during surgery and removed. We are going to schedule the biopsy for this week.
After the biopsy results come back, I will go up to San Francisco and have surgery. After surgery I will have very specific radiation treatments (CYBER-KNIFE) spread out over a ten day to two week period.
I'll know more about the specific timeline later today.
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Ben,
The good new is that I know someone that works at SFGH and it is truly a remarkable place.
I can guess that this must seem scary to you, but I am glad that they have finally decided on a course of action.
I as always am thinking about you.
Lakers played a good game Sat night. Heather was there and sat 10seats or 10 rows away from Karem..Wish it had been me.
I love you.
Gayle
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